Tuesday, June 30, 2009

Crossing the Channel

End: green shores appear; we assume our names,
Our luggage, as docks halt our brief epic; no debt
Survives arrival; we walk the plank with strangers.
-From Channel Crossing by Sylvia Plath

We all go through struggles and rough waters in our own little epics. Times aren't always easy, in fact, most of the time they're difficult more often than they are not. At least in my experience. But every once in a while we seem to find ourselves in a resting period. Brief or years long, we get a chance to catch our breath and see all the good stuff life has to offer.

After the turbulent times, sometimes we find ourselves trying to redefine our place in the world. Maybe redefine isn't the right word, or at least not in that context... but, rather, we have become redefined as who we are, even if our names and faces haven't changed. Now we have baggage, though, we have memories we'd like to forget and quick reactions in order to protect ourselves from the past occurring again. Sometimes we have wonderful peace and we can actually see how it all works out in the end. One way or another. And after the mess is cleaned up and the tears dried, we are left, allowed to start again.

Trying to start again, sometimes we look around at the people we knew then and we realize that we no longer know each other. Or, maybe, we never did.

Either way, sometimes relationships have to come to a natural close, even if it's hard to do. Growing apart isn't a bad thing, scary as it may be, sometimes it's healthiest to just let it be. To let time do it's thing, to let ourselves grow for purposes we have yet to find.

Monday, June 29, 2009

Boring On Facebook

So, I'm on chapter four of my book. And I applied to write for the Examiner.com. And I joined Spice's committee. And I run two meetups. And I've got plenty of family and friends to spend time with. And an apartment and self to take care of. I have training that I'm trying to get off the ground for that 100 mile bike ride.

So - why was it yesterday when someone asked me if there was anything new, I said "nope". And every time he tried to think of something to ask me to get the conversation going, I said "nope" (or something like it). Except when he asked if I go out. And I said "yes". Then he asked where and I couldn't think of anywhere to say. Mostly because I go to all different places, most of the time. At least when he said "do you go to Philly alot?", I was able to confirm.

Then I was called "boring on facebook" by another acquaintance.

Oh well - maybe next time I'll remember myself.

Saturday, June 27, 2009

Michael Jackson


A long, long time ago...I can still remember
How that music used to make me smile
-American Pie, Don McLean

On my way to work on Thursday morning, in my usual groggy fog I stumbled across American Pie and blasted it. Little did I realize what the day had in store.

My parents bought me my first CD player. The same one that's sitting in my living room as I'm writing this. I'd had a love affair with music for years before but that CD player would change my life.

My first CD?

Michael Jackson - Dangerous

It was a new CD at the time. Newly released for Christmas season, 1991. It's the same album Black or White was on and my personal favorite - Give Into Me. Slash rocked out with Michael in that song, which is one hell of a collaboration. I had his other two preceding albums on tape but tape died just as quickly as CDs were released.

So, as the news spread Thursday afternoon, I sent out a few texts and I felt crushed, slightly surreal. Was this for certain? He was supposed to start a world tour, which he may have been practicing for when he hit the floor.

In both my lifetime and the lifetime before, only a few people have risen to the same caliber. And the last one standing completely is Madonna, which isn't saying much. Madge'll probably live to be 100. Some of the Beatles have already passed and, of course, Elvis is no longer with us.

For many of us 80's babies Michael just was. He rose to his heights with Thriller. And what a thrill it was. While messing with the neighbor, who is a few years younger, his roommates were watching the Thriller video one night. They had never seen it and I remember shaking my head at the time. I'd been watching that thing since it was made. More than 20 years before.

Michael had his troubles, that is a certain fact. His death, too early probably could not have come sooner for him. He lived a tortured life, rhinestone glove and all.

I personally never thought he did "it". That they were just going after his money. Yes, even the second time. What better case does one have if the person blamed has been blamed before? By the same token, that could also point to the fact that he did it, of course. Neither you nor I will ever really know for certain. And I do hope his acquittal was an acquittal for the right reasons. However, we should not let that tarnish what he was as an artist.

Michael Jackson was an icon, born to be one. Born to be a tragic figure, much like James Dean and Marilyn Monroe, as well as Elvis, of course. But his energy and his expertise and his talent cannot be understated because one moment of a performance from him was closer than most of us will ever be to perfecting one's art. Yes, dance is an art form. He is a legend. And he was a talent unsurpassed by anyone since. Genius usually comes with a price tag that most of us would be unwilling to pay.

His career and talent, his sheer ability to have actually changed the world. Which he did. He did so by entertaining. He did so by being weird. He did so by creating. He did so by living out his fate for all of us to see. Would you be willing to do the same? His influence touched so many, many in ways they don't even necessarily know.

I hope Michael got to go home Thursday afternoon, for the first time finding peace in safe and loving arms. No crowds to make him feel isolated and lonely. A dream of mine died on Thursday, along with MJ, which was to get to see him live in concert. But if I have to give that up so he can rest, I will happily say "catch you later".

Thursday, June 25, 2009

SuperAunt

"I mean think about that! It's like there were no people there, and then there were people"
- The Story of Us

When I left work the other night, Tuesday night, I realized that I had said it once again. "Neice". That my sister would be having my "neice" on Wednesday. I said it the same way over the weekend as if it were common knowledge. They hadn't known the sex of the baby, hadn't found out during the pregnancy. And low and behold, I was right. Even though "neice" was just a slip. Psychic or just a 50% chance of being right? I'll let you be the judge.

Either way, she's gorgeous. Absolutely stunning, as was expected. All of my siblings have made beautiful babies. Every single one of the kids are amazing to hold, look at, and interact with. I look forward to watching them grow, watching them become who they will be, watching them be who they are.

And right now I'm the boring aunt. The strange one who only gives them cards for their birthdays. Most of them don't have a clue and could care less what a savings bond is. But, one day they'll thank me. I love them all so much and as co-Britney fan called me yesterday, she said I'm like "super aunt". I'll wear that title proudly. I may or may not end up having my own kids one day but for now I'm just lucky enough to be blessed with eight amazing little ones already in my life. And possibly eight amazing babysitters by the time I get around to making any kids of my own.

Tuesday, June 23, 2009

It's Happening

I downloaded a few songs the other day. I hadn't downloaded any in a while and I decided to splurge on the three that I wanted. Yes, people, I said splurge. Yes, even at itunes prices, sometimes little things can be a splurge. So I splurged. And I burned myself a short CD with the new songs. At first, my feelings were melancholy when listening to them. But - as of late, not so much.

One of the songs I downloaded was the Dave Matthew's Band, Funny The Way It Is. This song is deep and it'll make you think. And the thoughts that come from it can be overwhelming. At any given moment, at any given time... everyone's going through something. Sometimes it's big and sometimes it's small. Sometimes it's exciting and sometimes it's bland. Sometimes it's life changing and some times it's simply repetitive.

In the midst of falling deeper and deeper in love with the song I have found myself writing again. After the realization with my journal, I sat down and started writing a book. Not just any book... my first book. At least the first book I've gotten this far with. Still have a long way to go but I'm getting there, little by little. No need to rush it. But, I do hope to actually finish it. Selling it seems so far away, I'm trying to keep myself from fantasizing too terribly much. Still, the writing goes and I'm energized in one of those "this is what I was born to do" kind of ways.

Once upon a time I read somewhere something to the effect of "artists are afraid that they'll only have one good idea". This much is true. But, the truth is, I have lots of good ideas already and I'm hoping that they'll keep coming. Somehow, that Dave Matthews song has got my head abuzzing. Abuzzing with the thoughts of the multitude of things that are happened to people, good and bad, at this very moment. Toss that together with my ideas come to the surface and I've got some real excitement in my bones. I wouldn't want to dedicate my life to a series but I would like to intermix my tales. Like Stephen King does. An off-handed or direct reference to another story... making characters seem so much more real. As if their story is already written, even if it's not actually in another book - yet. Just like your story is written, same as mine - though the ending hasn't quite shaped itself yet. Just like my characters, just like me.

Sunday, June 21, 2009

Father's Day 2009

Father's Day is today. And, I am thankful for my dad. I'm working a 16 hour shift so I won't get to see him but I did see him for a split second this morning, taking a walk around the river while I was on my way into work. I should have honked, at least. I'll definitely call him later. I have a great dad, I can't lie.

For Father's Day 2009, here's a reprint of an article I found the other day. Another great dad...

Adopted by a man who used to date my mom

By Kate Simonson with Meghan Daum

(REAL SIMPLE) -- The summers of my youth were filled with the kinds of activities that were common to every kid in the 80s but are considered almost death-defying these days: tree climbing, bike riding without a helmet, and daylong road trips spent in the backseat of the family car, where we bounced around like Super Balls, nary a seat belt in sight.

Still, my mother was safety-obsessed about some things, like swimming lessons. Year after year, she forced me to take them at our local pool in Iowa City. Having to go against my will seemed all the more unfair to me, since my mother could not swim and was actually afraid of the water.
But my mother reasoned that if water came between her children and their safety, she would be helpless.

"I can't save you," she would calmly state in answer to my pleas to bow out of the lessons. "So I'm going to do everything in my power to make sure you can save yourself." It's no wonder she embraced this philosophy of self-reliance. She knew how unexpectedly life can rob you of someone you care about. My parents adopted me as an infant and went on to have a biological child -- my brother, Jason -- a couple of years later.

My dad was an electrician, and he died in an accident on the job when I was three. After his death, my mother had to raise us alone, and she was acutely aware that she was truly on her own, with no backup plan. She was fiercely strong and yet constantly fearful.

I have almost no memories of my father. Instead I remember Mike Fieseler. He was a former industrial-arts teacher whom my mother dated off and on for much of my childhood. Jason and I weren't his biggest fans. He was a man of strict rules, while my mom's approach could be more properly deemed overindulgent leniency.

We resented having to share the spotlight with him -- a sentiment that was particularly strong every Christmas morning, when we had to wait for him to arrive before we could open gifts. (There is little a man can do to endear himself to children less than delaying Christmas-morning gratification.) And when they stopped dating, when I was 15, I wasn't unhappy to see him go.
Then, on February 18, 1991, when I was 17, my mother suddenly died of a brain aneurysm. One minute she was laughing with friends, enjoying an evening out; the next, she was unconscious on the floor. She never woke up. Just 19 hours later, she was dead, leaving my 15-year-old brother and me orphans.

In the moments of shock and horror that followed, my relatives all gathered in the hospital, and I went home with only a close friend for company (Jason followed a while later). We spent that night on our own. I was numb; it had all happened so fast. I could barely think beyond the immediate moment.

The next morning, my grandfather, aunts, and uncles were still immersed in their own mourning. Shell-shocked as I was, I knew I had to let people know what had happened. I saw my mother's address book lying where she had set it only days before and started dialing. One of the phone numbers I found was Mike's.

Even though he lived about an hour away, it felt like he was there in an instant. As soon as he walked in, he took charge -- and took care of Jason and me. Among other small kindnesses, he gave me a credit card and said, "Why don't you buy something to wear to the funeral?" He gave me permission to be a 17-year-old -- to focus on the more mundane issue of what I was going to wear instead of weighty adult concerns.

Generally, when children are orphaned, a family member comes forward to take them in. This didn't happen in our case. Everyone had a good reason, I suppose. My mom's father was too old to assume responsibility for us; my mother's sister and her husband had three kids of their own and weren't able to take in any others; her other two siblings were both single and worked long hours. The guardian named in my mother's will was a babysitter that none of us had seen in 15 years.

But I can tell you this: Abandonment, even for very good reasons, feels awful. It was heartbreaking and terrifying to have lost the person we loved most and then to be set adrift.
Months passed and it felt like our relatives could offer no reassurances. The only news we got was that if Jason and I remained without a guardian, we would have to enter foster care. Our mother was gone, and there was nothing we could do to save ourselves.

And, once again, there was Mike. After the funeral, he was a constant presence. He made sure that food filled the cupboards, the bills were paid, and the lawn was mowed. (Mike's adult daughter, Linda, pitched in and took care of his house.) He made sure I went back to school even when it was the last thing I wanted to do. His overbearing personality -- the trait I had hated the most -- is what comforted me the most and got me through those difficult days.
Mike says that Linda came up with the idea to make his role with Jason and me official -- he could become our guardian. He was on board right away. Mike still says he never considered not doing it; caring for us was simply the right thing to do. One day he made us his offer. In a moment where the grief of loss and the pain of being unwanted threatened to capture my very breath, this man, whose only tie to us was having dated my mother, said he would be honored to take us in.

From that moment on, everything was different. His girlfriend, Patty, threw us a "guardian party" when the paperwork became official. It was just a small gathering, but it made us feel special. I received a key chain with my initials, and I remember thinking that the idea behind it was so lovely.

Over the years, Mike has become not merely a legal guardian but a real father to me. When I fell into depression in college, unable to get past thoughts of my mother and all I had lost, he was there to listen.

When my husband, Eric, and I bought our first house, Mike spent weekends installing insulation and repairing our gutters. He never wrote me off as a good, mature kid who could handle everything herself. He walked the line between trusting me and recognizing when I might need help. And what more could you want from a father than that?

His was an unconventional path to parenthood, to say the least. It is not by birth or adoption that I consider this man to be my father; it isn't even through his presence in my childhood. It is rather by sheer good luck on my part.

Before he made that generous offer, I felt as though I had lost my mooring and the waters were flooding in; afterward, I simply felt rescued. If my mother had taught me to be strong and depend on myself, Mike imparted his own lesson -- that the world will provide for you, even when you least expect it.

Eight years after Mike stepped forward, he walked me down the aisle. Four years after that, I gave birth to his first granddaughter, Emily Michl Simonson. (Mike's legal name is Michl.) The name is a reminder of my saved past and a promise for the future, and I hope one day Emily will see that as well. Because as much as I plan to teach her to swim (indeed, she's now six and enrolled in lessons), I also want her to know this: No matter how fast the waters rise, no matter how hard it may be to keep her head above the waves, someone will throw her a line.

Friday, June 19, 2009

Calling All Animal Lovers





Hi, all you animal lovers!

This is pretty simple... Please tell ten friends to each tell a further ten today!

The Animal Rescue Site is having trouble getting enough people to click on it daily so they can meet their quota of getting free food donated every day to abused and neglected animals. It takes less than a minute (about 15 seconds) to go to their site and click on the purple box 'fund food for animals for free'. This doesn't cost you a thing.

Their corporate sponsors/advertisers use the number of daily visits to donate food to abandoned/neglected animals in exchange for advertising.

Here's the web site! Please pass it along to people you know.http://www.theanimalrescuesite.com/

Thursday, June 18, 2009

Boring

To be chronically boring. I mean, I don't know. I know I can be boring sometimes, all of us can. But to be boring all the time. Even when it seems like you've got something to say... repeating oneself over and over again with nothing new, nothing enlightening, nothing changing. Lack of understanding. To not see gray, to only see black and white. To not be willing to even acknowledge that you might be wrong. Just because you acknowledge that you could be wrong and even entertain the notion doesn't mean you are, it just means you COULD be. Because - oh no - who does that make you? To have no conversations of real depth because you're simply not willing to see the other side. To make sure everyone you meet knows these specific things about you, upfront and personally, without ever divulging any real time spent or any real conversation. To dismiss based on only what you think you know. To not understand the concept of balance. To obsessively speak about any one thing too much. Life is a journey of discovery, as cheesy as that sounds. If you're not discovering anything new, that's boring. And boring people make for boring conversation. Boring conversation makes for a numbness that's hard to shake.

I don't know... I discovered earlier what a good chunk of a problem I've been wrestling with as of late (yes, Texan, you're right... I hadn't worked it all out, obviously) has to do with the fact that I get bored when the people around me aren't well rounded and that's depressing, folks. Depressing to the point that I hate to admit it about anyone. But, yeah... some people are just... BORING. And boredom isn't comfortable for anyone.

Tuesday, June 16, 2009

Digging to China

Digging deep, I'm looking for that extra something that I've got in reserve. That little something that's underneath all the other stuff. I don't want to lose out because I've counted myself out. But, I don't want to build myself up too much either. So, if I do fall I won't fall so hard.

Digging deep, digging deep... hoping and digging deep.

Monday, June 15, 2009

No Bridge, Just Water

It must’ve been much harder when there was no bridge, just water
- Dave Matthews Band, Funny The Way It Is

The truth of the matter is I've been dealing with stress... little stresses and big stresses... as of late... poorly. I've got a whole pile of issues in front of me and I'm not sure how to resolve them. Some of them cannot be helped and are simply not as big a stress for me as for others. Some of them are simply stressful situations that I can't help but I'm stuck with. Some of them are of my own making and some of them just keep reminding me that no, life is not fair.

Do wish it was, at least sometimes but whatcha gonna do? I guess what I would like to have the most right now is some sort of something to look forward to. I don't feel like I have much of that going on. And I know I'm not the only one who feels this way. I mean, I've been trying really, really trying to improve my life. But every little step seem to lead nowhere anymore. I can't seem to get ahead or even on track with anything.

I'm trying, people. I really am. But the more I feel left behind in all aspects, the more I get upset with others. It's no one's fault, per say. I'm just frustrated and trying. I'm tired of trying to improve, of hoping and working and getting nowhere fast. My path seems to be stuck in a circular pattern at the moment. It's like there's a tree, a very large tree and the path leads around the tree back to the same spot over and over again. I could try going beyond the path and forge my own way... but every time I do that, I hit water. Very deep and turbulent water, with no real bridges in sight.

But... I'll keep hoping for the bridges anyway and maybe one will show up. I just hope it's not one of those scary rope and wood bridges with planks missing...

Saturday, June 13, 2009

Heart On My Short Sleeve

Oops. And ugh.

I had a little, or lot, more beer than I should have last night. Led me down the road of not doing anything I actually wanted to get done this morning. Not hungover, exactly... just went to bed too late. Debated a bit much, annoying myself and hopefully no one else. I complained about a few specifics and wish I hadn't. I just wish certain folks didn't affect me the way they do. And I wish I could genuinely just let things roll off my back, in one ear and out the other.

But, I'm still stuck in a couple cycles, not so happy with that fact. I feel really let down by several folks and rejected by others. And rejection always hurts. Some of it is growing apart, some of it's not. Some of it is just because I am who I am and they don't want that. But, that's ok, ultimately. That's just simply a part of life.

So... self esteem suffers and I find myself not digging myself too terribly much. And then when I don't get up and get stuff done, I'm disappointed with myself and can begin to see why people might not respond to me the way I would like them too.

Clearly, I'm feeling blah today. And embarrassed because here I am pouring out my heart, for no good reason. I don't want pity or anything like that... that just makes a person feel even worse. What I want is to feel wanted. And I don't. Maybe it's because I'm feeling like this or maybe it's because it's been a long time since I've felt special in any way. Maybe I'm just human and have to get used to it. Maybe I really should just stop worrying and know that everything's going to work out the way it's supposed to. But what if "the way it's supposed to" just doesn't get any better than this?

Ok... time for me to deflate the balloons and get started with my day.

Friday, June 12, 2009

Footprints

“The times when you have seen only one set of footprints in the sand, is when I carried you.”
- From Footprints in the Sand by Mary Stevenson

Last night was a rough one for my nephew. He was alright, smiling a bit, talking some and enjoy his mac and cheese right after I got there. But once it came to taking his medicine, all hell broke loose. In a way it hadn't before. He's sick of taking the stuff. Twice a day. He doesn't want the syringes or the spoonful of yogurt. Either way, he still tastes the chemo. He still tastes the horrible stuff. My brother asked the family to leave, which was something new. I mean, how do you explain to a three year old that he's got cancer? As far as he's concerned, his hiney is the only thing that needs healing and that doesn't seem to want to improve.

So... I drove home, angry and feeling bitter. Cranky from watching the scene unfold the way it did. I love my family and that little boy so much, it hurts to see them hurt.



After I got home, my mind was briefly rested by watching Lost. Finished up season 4. I'm almost completely caught up at this point. My mind and body rested for a little while but my mood did not. I sat down in bed, waiting for tired to creep up on me and I wrote the final entry in my Footprints journal. Then I moved onto my new journal. The butterfly journal. This is the first journal I've ever completely filled. It started in May of 2008 and I completed it last night. I feel a strange sense of accomplishment with it. And, honestly, it feels good.

On my way to work today, my mood still not so great... kind of bitter and cranky about all sorts of things... it dawned on me. If I could fill up a journal in just over a year... I should be able to write a novel. I didn't write in my journal every night but many nights. And usually I'd only spend a few minutes on it. But, it was completed. Now I'm moving onto a new one. If I'd just dedicate the same amount of time (ok... maybe a little more) to my writing, I could actually get somewhere with it soon. Maybe by the time I fill the butterfly journal, I'll have written a half or whole book/script. Maybe... stay tuned.

Wednesday, June 10, 2009

By Charles J. Sykes

Not a bad list to know, particularly if you've got kids...

Rule 1 : Life is not fair - get used to it!

Rule 2 : The world doesn't care about your
self-esteem. The world will expect you to accomplish something BEFORE you feel good about yourself.

Rule 3 : You will NOT make $60,000 a year right out of high school. You won't be a vice-president with a car phone until you earn both.

Rule 4 : If you think your teacher is tough, wait till you get a boss.

Rule 5 : Flipping burgers is not beneath your dignity. Your Grandparents had a different word for burger flipping: they called it opportunity.

Rule 6 : If you mess up, it's not your parents' fault , so don't whine about your mistakes, learn from them.

Rule 7 : Before you were born, your parents weren't as boring as they are now. They got that way from paying your bills, cleaning your clothes and listening to you talk about how cool you thought you were. So before you save the rain forest from the parasites of your parent's generation, try delousing the closet in your own room.

Rule 8 : Your school may have done away with winners and losers, but life HAS NOT. In some schools, they have abolished failing grades and they'll give you as MANY TIMES as you want to get the right answer. This doesn't bear the slightest resemblance to ANYTHING in real life.

Rule 9 : Life is not divided into semesters. You don't get summers off and very few employers are interested in helping you FIND YOURSELF. Do that on your own time.

Rule 10 : Television is NOT real life. In real life people actually have to leave the coffee shop and go to jobs.

Rule 11 : Be nice to nerds. Chances are you'll end up working for one.

Tuesday, June 9, 2009

Camouflage

After the lightning died down and the hail stopped falling, I stopped hiding indoors and headed to the hospital this morning. I woke up to the sound of almost consistent thunder but it sounded strange, like it was canned thunder. So, I popped open my window a bit and discovered that my new windows are amazing at holding back sound. My landlord had said they would be but now the thunder sounded normal and I became a little less tense. That was, until, those couple lightning strikes nearby. Not sure where they hit exactly but things shook and the crack and brightness were occurring at exactly the same time.

I expected more traffic, due to the storms but didn't really find much. According to KYW, everything leading up to the Walt Whitman bridge was backed up. Didn't seem to bad to me, at least not the way I came.

Once at the hospital, my sister in law was surprised by the fact that there had been a storm. Apparently, they couldn't hear a thing inside their room. My nephew is a tough little guy right now. The steroids are causing mood swings that only seem to generally go in one direction. Cranky and angry. The hugs and kisses he was giving me have turned to eyes closed and fake sleeping, just so I'll go away. It's a sign that he's getting better. A strange sign but a sign nonetheless. It's hard on the family to see because he's a generally happy go lucky little boy. Eventually this will pass though and we'll have our little football player back.

As I went to leave and come to work, I went into the first elevator. There was sniffling, as there is every so often at such a hospital. The source of the sniffling is what surprised me. A military man. Coming down from a floor above oncology. He was in fatigues from head to toe and had some stripes on his arm. And tears coming down his face. He wasn't facing anyone but staying rather close to the buttons on the elevator wall. It was a strange sight to see. Not only a man crying but a military man. I guess I haven't seen that many men cry except for in movies. Not that I've never seen them cry but not many. And certainly not someone in uniform. Sometimes I find myself wondering if the world is really as cold as it seems. If it's really as tough and insensitive as I've experienced. Going to that place everyday has shown me the opposite. How tender and sensitive and fragile the world really is.

A little boy heading toward the elevators as I was heading away from them looked at me and smiled. "Hi!", he said. I said hi back and then I heard him say it to someone behind me. Isn't that it? Kids hold the key, we all need a little more "hi" in our lives, a little more friendliness, a little more pat on the back.

Monday, June 8, 2009

Finding a Needle

"Beautiful smile. I didn't know paradise had a twin!"

I can't help but wonder where dude first heard this pickup line. Or why he thought I'd even vaguely choose to respond to it. It's funny, I'll give him that. But, not funny in that, "Wow! This guy is really funny" way... nope...

The occasional break from stress is good. Even if it's only for a moment. Finding this needle in the haystack of gloom and doom (that's how my horoscope described it) was good. Gave me a chuckle, we all need chuckles sometimes.

Friday, June 5, 2009

Sunscreen

I posted this once before... a long time ago. For those readers who didn't see it the last time, I'm posting it again...

http://www.youtube.com/watch?v=sTJ7AzBIJoI


Last time it was just the words, this time it's the video.

Tuesday, June 2, 2009

CHOP

I spent 7 of my 8 hour work day yesterday watching hash marks cruise across a screen. Needless to say, by the time I left I was thoroughly miserable. It took a while to shake off the feeling of boredom and the tunnel vision that I had somehow acquired. Driving home felt funny. But, I made it home and I got some stuff done. And then I went to visit the angel in the hospital.

Little guy slept straight through my visit, my brother's visit, talking, laughing and the loud bang of a "wet floor" sign falling flat onto the linoleum. I suppose the spinal tap took alot out of him. He was put under for it, which, I assume is what actually did him in. But, he slept... and I stared. Looking over my oldest brother at times, just so I could keep my eye on him.

This whole experience has been amazing. And eye opening. CHOP is amazing. The nurses and doctors. It's one of the best hospitals in the country and after experiencing all we've experienced there so far, I have to say that I can imagine that it really is. My brother spoke to a guy who's been there with his child for 11 months. They tried 3 hospitals in Florida first but he didn't feel the diagnosis was correct so he looked for the best hospital they could find. And up to Philly they came. CHOP discovered that he had a rare disease, not Chrone's. Only 50 children in the country have whatever it is. And CHOP found it, when three other hospitals couldn't. The facility itself is something to look at, huge. Just to get to my little champion's room, I have to take two elevators and two sets of stairs. At first, it was easy to get lost. Now that I've gotten a little more used to it, I can consider myself an almost professional. I don't know how I feel about that.

CHOP is amazing and wonderful and somewhere to thank God for. However... it's also a building of trauma and sadness and it's a reason that I have found myself questioning God because of. I do not expect to get an answer but I do wonder why. Why these kids even have to get sick or hurt? Surely, it's within His power to make sure nothing happens to babies. As it seems my nephew's next door neighbor may have passed away the other night. Leaving that night left me reduced to a sniveling mess because the little boy's screaming had stopped. It did not stop because the pain had stopped, exactly. His family and/or friends were going in and out of the room, the nurses were standing guard outside with their yellow smocks. Tears and pain and tension were everywhere on that floor. The room has been emptied and the bed stripped. Oh, God, a child died the other night. He's in Your arms now but the pain that must be left behind... it's almost too hard to bear. And he wasn't even my family. I don't even know his whole name. Dear God... why?

But, stuff does happen to babies and overall, it's easier to just be thankful for a facility like CHOP and to have it only minutes away is also something to be thankful for. Being thankful is easier than questioning because suffering is a mystery all it's own. There's no good explanation in this lifetime, it just is.